We dedicate our entire activity to the children diagnosed with congenital heart malformations

 

What is Congenital Heart Disease?

 

Atrial septal defect (ASD) is a congenital heart malformation in which there is abnormal communication between the two atria (upper chambers of the heart, where the blood returns to the heart through the veins) .The pressure in the left cavities of the heart (atrium and ventricle) are higher than the pressure in the right cavities of the heart (atrium and right ventricle) and thus atrial septal defect or a ventricular abnormally allows passage of blood in the cavities left in right cavities (are left-right). The amount of blood passing from the left side of the heart in the right septal defect depends on the size and the pressure difference between the cavities. This increases blood volume in the right side of the heart and lungs and the left ventricle is under pressure. Increasing blood flow to the right ventricle and the right ventricle to the lungs makes more work and expand. Eventually, the right ventricle can no longer pump blood efficiently to the lungs which leads to stagnation of blood in the abdomen, legs (so-called right heart failure) The Interventional closure DSA can be achieved either by placing a device umbrella at DSA, which closes the abnormal communication between the two atria, the best yielding results if secundum type DSA centrally located in the septum that separates the atria or DSA surgical cases that do not allow Closing the device.

Ventricular septal defect (VSD) is a congenital heart malformation in which there is abnormal communication between the two ventricles (lower chambers of the heart, where the blood is pumped into the arteries) .The pressure on the left cavities of the heart (atrium and ventricle) are more higher than the pressure in the right cavities of the heart (atrium and right ventricle) and thus atrial septal defect or a ventricular abnormally allows passage of blood in the cavities left in right cavities (are left-right). The amount of blood passing from the left side of the heart in the right septal defect depends on the size and the pressure difference between the cavities. This increases blood volume in the right side of the heart and lungs and the left ventricle forcing. Increasing blood flow to the right ventricle and the right ventricle to the lungs makes more work and expand. Eventually, the right ventricle can no longer pump blood efficiently to the lungs which leads to stagnation of blood in the abdomen, legs (so-called right heart failure). VSD closure is recommended in these cases the signs of volume overload or poor left ventricular function, pulmonary hypertension DSV is not very evolved and / or responding to specific treatment or testing vasodilating substances in patients with a history of infectious endocarditis. DSV small sites without hemodynamic impairment will not close.

Foramen ovale is a small hole located at the septum (wall separating the two atria). During fetal life, the fetus does not use the pulmonary circulation to provide sufficient oxygenated blood, which in this case will come from the mother through the umbilical cord and then through the venous system to the heart of the fetus and straight through the foramen ovale. When this is not done properly and persist FO is what is called a patent foramen ovale - which works like a valve defect, opening in certain circumstances associated with increased intrathoracic pressure (ie. Coughing, sneezing). FOP closure may be indicated in situations like: a. If you are eligible for cardiac surgery for other conditions (congenital or not) and you also PFO; b. Closing the PFO can be made in case of hypoxia that is related to the existence FOP; c. the treatment of migraine PFO closure is not recommended routine; d. The closure of PFO as prevention of stroke is controversial. The closure may be recommended for patients with recurrent stroke despite medical therapy when it ruled Another cause of stroke.

In the womb, the fetus gets oxygen from the mother through the placental circulation and thus no need for blood to pass through the lungs to be oxygenated. Blood circulation is diverted through a large artery that connects the left pulmonary artery and the aorta, called PDA. After birth canal, the first breath of newborn cause changes in the lungs and heart. Gradually begin to close the ductus arteriosus and, normally, the ductus arteriosus is replaced over several weeks by scar tissue, thus preventing the reopening. If due to certain factors, the ductus arteriosus does not close, blood can pass the pulmonary circulation and the systemic circulation in this condition is called patent ductus arterial.Decizia to close a PDA or surgical means nonsurgical is taken cardiologist in Following examinations. The surgery is indicated in patients presenting symptoms and impaired heart cavities due to the persistence of the ductus arteriosus. It may consider closing the PDA case determine a small but audible murmur given the long-term benefits. Generally not recommended closure of PDA silent (not audible murmur determine clinical examination) and the closure is contraindicated in patients who have Eisenmenger syndrome secondary PDA.

It is a congenital disease accounting for 5-8% of all congenital heart disease, which involves narrowing (stenosis) of a portion of the aorta (the main vessel of the body). May be insulated (most common) or may be associated with other heart disease (ventricular septal defect, patent ductus arteriosus, valvular disease - bicuspid aortic and, more rarely, with heart disorders involving right). Classic coarctation is located in the thoracic aorta after the left subclavian artery origin (the last branch which originates from the initial portion of the aorta), but can also affect the horizontal portion (transverse) of the aorta. Rarely, damage to the vessel involves the final segment of the aorta in the chest or middle abdominal part, in these cases, it is usually longer affected a portion of the vessel. The consequence is obstruction of blood flow through the aorta. The narrowing is due to folding the inner layer of the aorta becomes as a shelf or a central or lateral orifice membrane, making it harder for blood flow through the vessel. Most often the diagnosis is established before the age of 10 years but sometimes (about 25% of cases) the condition is diagnosed after this age.

 

Teodora Rogojina - 4 years old, diagnosed with Atrial Septal Disease

"Hello! My name is Maria Rogojina and I am writing you from Iasi city. My little daughter, Teodora, who's 4 years old, has been diagnosed with a 9.4 mm ostium secundum ASD and a 3.3 mm restrictive VSD. She was hospitalized for a whole week for a surgical procedure but every time she was in the hospital, she got sick a day before the procedure. The doctor said to me that this ASD might be closed with a Cocoon device and that small VSD might be ignored. Also, he told me that in Iasi city they cannot perform this kind of intervention. From all my heart, please, help me even with a simple advice. They told me they did every possible thing for Teodora. Thank you!"

  
  • Ostium Secundum ASD
  • Defect size 9.4 mm
  • Indication for percutaneous defect closure

Fundraising progress

 

* The amount is expressed in Euro

Raised so far

Amount needed

On 16.09.2015, Teodora's ASD was closed. The size of the atrial septal defect was 15 mm and the size of the closure device was 16 mm. The amount was raised due to parents of Lalac's kindergarten children! Thank you!

Stoica Annelys - 4 years, diagnosed with Atrial Septal Disease

 

 

Annelys is 4 years old and she is the only child of Andreea and Alexandru. They wanted a child and have enjoyed it happened , even though little Annelys was diagnosed with atrial septal defect and congenital cataracts . The girl underwent a series of surgeries to correct cataracts therefore her parents hope that the ASD can be closed. In time , due to growth of the child, the defect in her heart was bigger. Annelys is a cheerful girl , lively and likes making new friends. She makes new friends easily and loves to go to kindergarten . She already knows to read and learned English too. " Lord, please save my eyes and my little heart ", these are Annelys’s words.

 
  • Atrial Septal Defect
  • Defect size 13/15 mm
  • Indication for percutaneous defect closure

Fundraising progress

* The ammount is expressed in Euro

Raised so far

Amount needed

 

UPDATE! The amount needed for Annelys's surgery was raised! The atrial septal defect was closed on 26.06.2015. The size of the closure device was 18 mm. The procedure was paid by "Mereu Aproape" Foundation and all of the donated money for Annelys's case were redirected for another Help Romania's case - Paun Stefan David!

Paun David Stefan - 5 years, diagnosed with Atrial Septal Defect

Paun Stefan David is 5 years and ten months old and he loves going to kindergarten. The little cars are his favorite toys and dreams of being a pilot when he grows up. Since the age of 6 months when it was first diagnosed with pneumonia, health issues have not ceased to appear. Pale face, lips discolouration, feeling sick and more frequent blackouts have worried his mother, who went to the doctor for an advice. The correct diagnosis was only established in February 2015 when atrial septal defect that David was diagnosed was already 2.6 cm large. For him, the chance of survival is the correction of congenital heart malformations and closing the defect as quickly as possible. David lives with his parents and his five brothers in a small house with two rooms in Dambovita County. All the family lives of 80 euros - social assistance and the money David’s father earns from working as a day laborer. For them , the payment of such interventions would be impossible to do. Therefore, we need your help saving David’s heart !

 
  • ASD with significantly left-right shunt and straight cavities expansion
  • Defect size 2.6 cm
  • Indication for percutaneous defect closure

Fundraising progress

* The amount is expressed in Euro

Raised so far

Amount needed

UPDATE!

On 19.03.2015, David's ASD was closed. The size of the atrial septal defect was 21 mm and the size of the closure device was 24 mm.

Tarabasanu Gabriela Cristina - Diagnosed with Atrial Septal Defect

Tarabasanu Gabriela Cristina is 5 years old and like every kindergarten child, she wants to discover something new every day. Unfortunately for her, part of the time devoted to fun activities turned into periods of hospitalization, visits to doctors and .... more diagnoses. The most serious health problem is represented by a congenital heart atrial septal defect-9 mm size. Diagnosis is secundum atrial septal defect 6/9mm left to right shunt and slight expansion of the straight cavities. Luckily, Cristina can be a healthy and active child, the medical indication for percutaneous closure of atrial septal defect with umbrella-type device. This is a procedure that takes half an hour, the child is hospitalized one day, and the attachment of the device will be through a sting of only 0.5 millimeters. All these benefits will offer him a normal life without medical bans, without limits. Get involved! Your help will change her life!

 
  • ASD with significantly left-right shunt and straight cavities expansion
  • Defect size 6/9 mm
  • Indication for percutaneous defect closure

Fundraising progress

* The amount is expressed in Euro

Raised so far

Amount needed

Update!! On 19.03.2015, Cristina's ASD was closed.

The atrial septal defect size was 8 mm and the device size was 12 mm.

Tudosoiu Marius Gabriel - 6 years, diagnosed with Atrial Septal Defect ostium secundum 8/10 mm with significant left right shunt and severe right cavities expansion

Marius Gabriel - 6 years old - Diagnosed with ostium secundum atrial septal defect 8/10mm with significantly left-right shunt and with right cavities expansion Marius Gabriel is 6 years old and from next year he will go to school. He loves to draw and swim but his parents keep him away from the sport for fear of the effects of cardiac malformation Marius was born with. Diagnosis came without permission, following a thorough consultation by the time when Marius was 2 years old and he was hospitalized for pneumonia and respiratory failure. Another time, Marius passed out in his father arms. With your help, Marius can live a normal life. Get involved!

  • Ostium Secundum Atrial Septal Defect with severe right cavities expansion
  • Defect size 8/10 mm
  • Indication for percutaneous closure
  • For treatment Marius needs 6700 euro

Fundraising progress

* The amout is expressed in Euro

Raised so far

Amout needed

UPDATE! : Marius 's case was a medical emergency and was treated even if not all the necessary amount was collected.  Thank you for your trust and involvement,  ARES Centers !

So far, only 2,000 of the 6,700 euro were collected . Below you can donate online to pay the  remaining amount !

 

Verestiuc Anastasia - 5 years

Diagnosed with ostium secundum atrial septal defect – 25 mm - Right cavities expansion

Anastasia is 5 years old, but she is mature and wise as not many children at her age. She was diagnosed with interatrial septal defect and as its complication, Anastasia caught frequent and violent cold. She has 5 brothers and a lot of friends, but she cannot join them at playground without paying the price: hospital visits, antibiotics and injections. She wishes to run, to ride her bicycle, but she can only watch the other kids doing that. It is still a chance for Anastasia to be saved from the risk of an open heart surgery – the doctors fight for treating her by a noninvasive procedure using the cocoon septal device. Let's fight together for making this intervention possible. Donate for her cause!

  • Atrial Septal Defect with right cavities expansion
  • Defect size 25 mm
  • Indication for percutaneous closure of the defect
  • For treatment, Anastasia needs 6.700 euros.

Fundraising progress

* The amount is expressed in Euro

Raised so far

Amount needed

THE AMOUNT NEEDED FOR ANASTASIA'S SURGERY WAS RAISED!
CLICK FOR MORE INFORMATION ABOUT THIS CASE!!

 


  

Treated cases

 

Report a case!

If you have someone appropriated who was diagnosed with a heart malformation, Help Romania will help you.

 

What can you do?

Complete the form data and we will contact you as soon as possible . Each reported case will be reviewed by the Medical Commission and by the Commission for Social Survey . Depending on the medical indication of each case and the emergency of performing the procedure also depending on the financial situation of diagnosed children's parents, the child will be included in the " Save a child's heart " campaign.

What is the selection criteria for inclusion cases in the campaign ?

We take responsibility of granting equal opportunities for each reported case, the only criteria for inclusion in the " Save the Heart of a Child" campaign is : 1. Findings from the point of view of the child 's medical condition . 2. Emergency treatment case 3. The financial situation of the family

Evaluation Committee

Medical Committee

Dr. Dan Deleanu

Coordonator

Medic Primar Cardiolog. Fellow al Societatii Europene de Cardiologie. Fost Presedinte al Societatii Romane de Cardiologie (2008-2011). Coordonatorul Sectiei destinate Inchiderii Percutane a Malformatiilor Congenitale Cardiace din cadrul Centrelor de Excelenta in Cardiologie si Radiologie Interventionala ARES Bucuresti.

Dr. Silvia Iancovici

Membru

Medic Specialist Cardiolog. Competenta in Ecocardiografie transtoracica si transesofagiana. Supraspecializata in Ecografie cardiaca Transesofagiana 2D si 3D pediatrica si adulti. Medic in cadrul Sectiei de Cardiologie Clinica a Centrelor de Excelenta in Cardiologie si Radiologie Interventionala ARES Bucuresti. Medic in cadrul Sectiei destinate Terapiei Minim Invazive a Malformatiilor Congenitale Cardiace ARES Bucuresti.

Dr. Oren Iancovici

Membru

Medic Specialist Cardiolog. Competenta in Ecocardiografie transtoracica. Medic in cadrul Sectiei de Cardiologie Clinica a Centrelor de Excelenta in Cardiologie si Radiologie Interventionala ARES Bucuresti. Medic in cadrul Sectiei destinate Terapiei Minim Invazive a Malformatiilor Congenitale Cardiace ARES Bucuresti.

Social Committee

Roxana Popa

Coodonator / Presedinte Help Romania

Presedinte Asociatiei Help Romania

Iulian Plescan

Membru

Director Operational Centrele de Excelenta in Cardiologie si Radiologie Interventionala ARES

Mircea Ungureanu

Membru

Coodonator Departament Implicare Sociala Centrele de Excelenta in Cardiologie si Radiologie Interventionala ARES Bucuresti

With your help, children diagnosed with congenital heart defect will enjoy happier and healthier futures!

Get involved!

 

 

Save a child's heart! Artistic workshops for humanitarium purposes

On 18-19 october 2014, Help Romania organizes at Attitude Ballet Studio  (Ing. Emil Balaban Street , n0. 6, Bucharest, near: Polona Street corner with Eminescu Street), saturday at 11.00/13.00, sunday at 10.00/11.00/13.00, workshops for theater, ballet and dance in order to raise funds for the campaign "Save a child's heart".

 

Help Romania Team

Save a child's heart

Roxana Popa

Coodonator / Presedinte Help Romania

Presedinte Asociatiei Help Romania

Ovidiu Bordeut

Vicepresedinte Help Romania

Vicepresedinte Asociatia "Help Education Romania"

Oana Tinu

Membru Fondator Help Romania

Membru fondator Asociatia "Help Education Romania"

A campaign initiated by:

 
 
 

 

And supported by: